February 4, 2013

Congressman Fred Upton (R-St. Joseph) speaks on the floor of the U.S. House of Representatives in strong support of legislation to help improve the health and well-being of children afflicted with rare pediatric and genetic diseases. The bipartisan National Pediatric Research Network Act of 2013 (H.R. 225) allows the National Institutes of Health (NIH) to fund pediatric research consortium that are formed from cooperating institutions to promote greater research efficiency and collaboration. Upton has met on numerous occasions with Southwest Michigan families concerning this and other legislation to support children with rare and genetic diseases.